December 14th, 2012

Turning Five Tomorrow

Me, December 15, 2007 – University of North Texas

Yeah, I can’t believe they let me have a Masters degree either, especially after the other five year anniversary post I wrote about the process of being waitlisted and ultimately declined.

To mark the occasion I’m sharing excerpts of my 2009 nomination letter for Dr. Ana Cleveland, who received the 2010 ALISE Award for Teaching Excellence in the Field of Library and Information Science. It tells a story that many know parts of but not as a collective whole and certainly not with the picture that says a thousand words.

My name is Nicole Dettmar and it is an honor to support the nomination of my former professor and lifelong inspiration Dr. Ana Cleveland, Regents Professor and Director of the Houston and Health Informatics Programs of the Department of Library and Information Sciences at the University of North Texas (UNT) for the ALISE Award for Teaching Excellence.

On the day Dr. Cleveland called to notify me that I had been accepted as one of the fellows but needed to be a full time student as part of the fellowship program, I tried to decline the opportunity as I didn’t see how this would be possible while working and raising a family. Dr. Cleveland refused to allow me to do so. I will never forget her saying “Do not despair! We will support you!” and was humbled by her confidence in me and my abilities when I had little in myself.

Dr Cleveland was true to her words of support then, numerous times throughout the sixteen months it took to earn my Masters of Science in Information Science degree with a 4.0 average, and now as I am one year into my professional career. When I was a student, she advised me on a course load each semester that included challenging core courses and her health informatics curriculum with other classes that allowed balance for school, work and life. Dr. Cleveland contacted several of her colleagues in the Seattle area about me, an essential introduction that gave me a vital boost from being an unknown distance education student at a Texan school living in Washington to ‘one of Ana’s students.’

Nine days before graduation in December 2007, our house flooded from a storm. I called Dr. Cleveland in tears, once again not seeing how things would be possible for me to still graduate. “Do not despair!” She took the lead and contacted all of my other professors, explaining the situation and coordinating times for me to work out modified final project arrangements with them. I could not have made it through that time without her support and was grateful to still be able to fly out to Texas with my family for graduation after all. Her beaming smile behind me on the platform speaks a thousand words of pride.

I cannot envision a more dedicated, knowledgeable advocate for students and professionals in the medical information field, nor a more genuinely supportive professor than Dr. Ana Cleveland. I also cannot adequately express how grateful I am for the many opportunities she has given me.

Forever and always, thank you Dr. Ana.

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December 10th, 2012

Crashing and Phoenixing: Data MOOCs

That social network analysis MOOC (Massive Online Open Course) I signed up for that initially went so well? I started having technical problems (not being able to view the videos at all, or seeing them without sound) on both Internet Explorer and Firefox. Updating browser versions, Flash & Java weren’t being able to fix it and I quickly learned closed captioning alone isn’t enough for me to ‘get it’ with videos, so I called it quits.

That said, there are several other MOOCs that have caught my attention for 2013 that may be of interest to you especially for data management and visualization. Things like the Electronic Health Records Infographic from healthit.gov don’t create themselves, although my quibble is the source data at the bottom needs to actually be legible.

Introduction to Infographics and Data Visualization – January 12 – February23, 2013. This is the second offering of the class from the Knight Center for Journalism and the course platform is Moodle. I teach using Moodle so I’m studying the design and management closely – currently there are over 3,400 of us in there when I often cap my classes at 50 to keep things manageable. Enrollment was painless and provided immediate access after account setup to the main page and an introduction video, syllabus, instructor bio and even links to the first week reading assignments to get a head start. Course objectives include

  • How to analyze and critique infographics and visualizations in newspapers, books, TV, etc., and how to propose alternatives that would improve them.
  • How to plan for data-based storytelling through charts, maps, and diagrams.
  • How to design infographics and visualizations that are not just attractive but, above all, informative, deep, and accurate.
  • The rules of graphic design and of interaction design, applied to infographics and visualizations.
  • Optional: How to use Adobe Illustrator to create infographics.

As with most MOOCs no academic credit is offered, and a completion certificate is available for $30 if you meet the requirements for finishing the class. Thanks to Susan Kistler of the American Evaluation Association for the tip!

Data Management for Clinical Research – April 2013 for six weeks (this seems to be a standard MOOC course length) by Vanderbilt University on Coursera, the same platform that was crashing & burning for me so I’m hesitant to give it another go plus I’m not directly involved in clinical research or supporting it. The course description is

This course is designed to teach important concepts related to research data planning, collection, storage and dissemination. Instructors will offer information and best-practice guidelines for 1) investigator-initiated & sponsored research studies, 2) single- & multi-center studies, and 3) prospective data collection & secondary-reuse of clinical data for purposes of research. The curriculum will balance theoretical guidelines with the use of practical tools designed to assist in planning and conducting research. Real-world research examples, problem solving exercises and hands-on training will ensure students are comfortable with all concepts.

It would definitely be of interest to those new to working in clinical research , and thanks to Amy Donahue for alerting the Twitter #medlibs community to it!

Speaking of Twitter #medlibs chats, they has been consuming the vast majority of my personal bloggage time – I can apparently either do that or this blog well/regularly but not both at the same time. Be sure to stop by this Thursday, December 13th (last organized #medlibs chat of 2012) and check the #medlibs blog for details and transcripts of the great conversations your colleagues have been having.

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November 20th, 2012

In remembrance year 5: Know the signs

 

Dorothy Irene
4/26/24 – 11/24/98

(yours truly in the 1970s culturally inappropriate Indian attire, with a wink and a smile to David Hale)

Heart Attack Signs for Women

This is my yearly post to increase awareness of the signs of a heart attack which is still the #1 killer for women. It’s not merely #1, it leaves deaths from all cancers combined for women in the dust (infographic excerpt source)

Although much progress has been made since I was making funeral arrangements for instead of getting ready to celebrate with my grandma the Tuesday before Thanksgiving 14 years ago (the original post and story) I know more can be done.

Please make sure your family and friends know these important signs of a heart attack. Never disregard them as indigestion, pneumonia, or make a doctor appointment for later in the day when it’s more convenient for everyone else. It was too late for my Grandma by the time she saw her doctor – she died within hours despite every effort made to save her after being rushed to the emergency room. (Source of signs from Go Red for Women)

  1. Uncomfortable pressure, squeezing, fullness or pain in the center of your chest. It lasts more than a few minutes, or goes away and comes back.
  2. Pain or discomfort in one or both arms, the back, neck, jaw or stomach.
  3. Shortness of breath with or without chest discomfort.
  4. Other signs such as breaking out in a cold sweat, nausea or lightheadedness.
  5. As with men, women’s most common heart attack symptom is chest pain or discomfort. But women are somewhat more likely than men to experience some of the other common symptoms, particularly shortness of breath, nausea/vomiting and back or jaw pain.

If you have any of these signs, don’t wait longer than five minutes before calling 9-1-1 for help. Also know what your heart attack risk factors are such as high cholesterol, diabetes, smoking and high blood pressure in addition to family history.

Under 55 and think heart attacks aren’t possible for you? Think again. It is taking medical research a while but they are learning more about why heart attacks in women under 55 are often deadlier than they are for those who are older – possibly due to being linked to blood clots instead of plaque buildup in arteries (source)

In younger women, instead of chest pains, the symptoms of heart attack may include more generalized pain in different parts of the body, including the jaw, neck, shoulder, back and even stomach. Recognizing that younger women may be less likely to present with the typical chest pains of a heart attack could help more of these patients to get the treatment they need in a more timely manner

Thank you for taking the time to read this and spread the word this Thanksgiving!

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October 30th, 2012

The Storify of Sandy

For as awful as Hurricane Sandy was and the after effects are right now, I have really been impressed with the power of Storify in quickly telling stories with a combination of narrative and embedded tweets from Twitter.

Here are some of interest

I tinkered around with Storify several months ago and mostly found it to be time consuming and cumbersome to curate, but inspired by the layout of these stories I’ll give it another shot after the #medlibs chat on Thursday without feeling the need to capture every.single.tweet of it and see what happens. Despite my initial reaction of snark to Your Twitter Hashtags Chats Are Ruining My Life, Please Stop I do get it and librarians in particular are obsessed with order. At the same time there are real gems being shared in these chats and I’m not stopping so long as things like this are offered as feedback -

 

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October 22nd, 2012

More MOOC Madness

After writing Feeding hungry minds: Libraries and MOOCs I backed it up a few steps over at our work blog to cover in more detail What is a MOOC and Why Would I Take One? with a picture that was so much fun to work with. That preoccupied cow line just had to be written to support it, and that’s what I’m always going to think of MOOCs as since our 10 year old son bellowed ‘MOOOOOOC! MOOOOOOOC!’ when he saw what I was writing about. Speaking of distance education, I forgot to mention here that I wrote A Librarian’s Guide to Webcast Wrangling  for Letters to a Young Librarian back in September – whoops! I hope it’s of help for librarians who are increasingly becoming involved with webcasts.

Back to MOOCs. The day after I wrote the work article, our Provost wrote about the University of Washington’s involvement in MOOCs. What was mentioned as the future of higher education in the opening keynote by Steven Bell at our Pacific Northwest Chapter of the Medical Library Association (PNC/MLA) Emerging Roles Symposium in Portland a few days later? MOOCS and the fact that just 6 months ago no one was really talking about them.

His other thoughts included (according to my notes)
alt-librarian – where does a traditional librarian fit in? If someone’s in a MOOC, what kind of library support would this student get? UPenn is participating in Coursera MOOCs, are their students looking for library resources within them?
The state of Minnesota was faced with a very public calling out on that when initially they said residents couldn’t take MOOCs via Coursera because the company had done so without registering with them first and paying applicable fees, as they require for universities offering online courses in the state, then backtracked after the ensuing hue & cry.

Another quote from Steven Bell that I liked is

If you want to create change, you have to be a leader willing to step outside traditional limits.
It’s exciting to see how the rapid evolution of online education to include MOOCS is challenging traditional limits and I hope librarians will continue seeking ways to become involved in being present within them.

 

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October 3rd, 2012

Opportunities: OpenNotes Results Published

From when I first heard about the OpenNotes Project (research to have patients access their doctors’ notes as part of their medical record) and included it in my June 2010 entry of Electronic Health Records: Not All About the Machine to meeting up with Dave again last month in Listen Again to the Ideas – The Role of the Patient, I’ve been looking forward to learning the results of the research.

Got under 5 minutes, appreciate great narratives and like videos? Here you go.

Like reading overviews with results pulled out in bullet points for easy reference? Go to e-patients.net’s coverage.

Like reading original publication data (of course you do!) ? Annals of Internal Medicine has it freely available.

Unfortunately I haven’t had a chance to read the full article yet. Questions I’ll have in my mind as I do will involve a focus on the experience of the research at Harborview, and opportunities for medical librarians to become involved with patients’ access to resources to understand the notes containing their health information. For as much as I love ePatient Dave he still is referencing Google as a starting point for health information research online. We medical librarians know there are much better ways, including the integration of health information resources within electronic health records such as MedlinePlus Connect, but it doesn’t help if others don’t know about and use them!

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September 26th, 2012

Feeding hungry minds: Libraries and MOOCs

I’m a huge fan of distance learning since it is one of the main focus areas of my job and also how I obtained my graduate degree. I constantly seek out opportunities to attend webcasts, online courses, Twitter hashtag chats (#medlibs tomorrow on expert searching, anyone?), you name it – I want to experience it all, see what does and doesn’t work, and see how I can adapt my teaching style to be more effective. Speaking of, check out the free new courses from the National Library of Medicine National Training Center along these lines!

Over the weekend I read a great article from The Seattle Times entitled Why some of the best universities are giving away their courses that I highly recommend if you have remained skeptical about all the distance learning buzz as it provides a great overview of the history of distance education and the reasons why more universities are offering classes via Massive Open Online Courses, or MOOCs.

I’ll give away the surprise ending because it’s easy to miss, and more in our field need to think about this role in the future (Sally Gore already is!), bold emphasis mine:

People with hungry minds will always find a way to feed them.

“We’ve had MOOCs and open learning resources for centuries,” says Dave Cillay, executive director of WSU Online. “They’re called libraries.

I’ve never met Mr. Cillay but I want to even though he’s obviously a Coug and I’m, well, a Dawg (our mascot is cuter).

The social network analysis course I wrote about earlier began on Monday and I am very impressed thus far. This is not so much due to the content (although I am learning from it!) but the Coursera class page layout, navigability, integration of adult learning concepts (how do they have these videos with quizzes embedded at intervals within them that offer immediate feedback to student answers along with tracking that they’ve been attempted?!) and other features thus far blow everything I’ve experienced in distance learning via Vista, Blackboard, Moodle and other platforms completely out of the water. I want it for my own teaching!

By the way, Massive is an understatement when it comes to this particular online class. Consider the course launched on Monday, this tweet as of just before 6pm Tuesday notes

I don’t know what librarian involvement there may be in this particular MOOC but I’d like to hope there was some.  I see opportunities for health sciences librarians to become involved in similar settings that align well with the international Trends in Health Sciences Librarianship that Mark MacEachern featured (links all better now! the PubMed link includes a UMich proxy so it’s a little off but you can grab the PubMed IDs ) especially increasing roles as teachers and greater emphasis on online access. My coworker Gail Kouame alerted me to a free webcast series from Libraries Thriving, “A Collaborative Space for e-Resource Innovation and Information Literacy Promotion. Thinking and doing” and I’m checking out their January webcast To Evaluation and Beyond: The Evolving Role of the Embedded Librarian.

More thinking and doing by librarians leads to satiated minds. What better way to do so than checking out quality free education resources that are accessible from anywhere, analyzing the concepts you’ve learned from them to see what would & wouldn’t work for you and your job duties/setting, and sharing with your colleagues?

 

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September 19th, 2012

Joining the cult following and kicking childhood cancer

The past few days my Presbyterian self has been surprised by my answers to questions at a website inspired by the traditional ten days of reflection that occur between the Jewish holidays of Rosh Hashanah and Yom Kippur.

Go ahead and give it a try. In the hectic pace of helping others, we can easily lose sight of where we are going with our own lives. Your answers can be as short or as long as you want them to be, and locked away until this time next year when 10Q will email them to you and you can see how things have (or haven’t) changed.

I can’t think of any other place where the second question on a frequently asked questions page about an organization is Are you a cult? and I love their honesty for it.

While you’re at it during this National Childhood Cancer Awareness Month, consider sipping some Callie’s Coffee that supports the Ben Towne Foundation until a cure is found. I’ve been a satisfied club member since July to help move our BUNN at work!

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September 12th, 2012

Listen Again to the Ideas – The Role of the Patient

Has it really been over two years since I first met ePatient Dave, Susannah Fox and Regina Holliday in Washington DC and I wrote about the joy of connecting with others outside the medical library field Of Impact, Information and Ideas?

Yours truly and ePatient Dave

His reaction when he recognized me across the room was almost the same as it was then, and it was a pleasure to meet Sherry Reynolds (@Cascadia on Twitter) and Peggy Zuckerman from the Society for Participatory Medicine.

I was thrilled that the Puget Sound Health Alliance brought Dave out to Seattle yesterday to address these points during his talk about empowering patients:

  • What challenges do empowered patients face in today’s health care system?
  • What does it mean to take an active role in your health care?
  • What role does power play in health care?

In the interest in getting this up ASAP my Evernote page of notes and pictures from his talk will be an edited work in progress but a few obvious and not so obvious highlights to shout out now and cover in more detail later.

He didn’t mention this at all (and should have done a live singalong!) but Dave’s performance in Gimme My DaM Data is a must see.

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September 5th, 2012

Back to school and social network analysis

In every walk with nature one receives far more than he seeks – John Muir

For the past several weeks our 10 year old son has been saying with unbridled enthusiasm that he can’t wait to go back to school and he’ll finally get his wish today as he begins 5th grade. I can’t relate since the first day of school since 4th grade or so for me was met with something between resignation and gut-wrenching anxiety. I am beyond thankful he doesn’t seem to take after me at all in that regard.

It’s impossible to not reflect on the passage of time during a quiet family morning last week walking through Muir Woods National Monument in California, where a vast number of the coastal redwoods are between 500-800 years old with some topping 1,000.

I’ve been reflecting on time ever since – especially about Thursdays at 6 pm Pacific/9 Eastern as the Twitter #medlibs chat began this summer. It’s been fabulous and a great start for a new channel of professional networking for our field, and I’m very thankful for guest hosts Patricia Anderson, Alisha Miles and Michelle Kraft. However, it takes a large amount of time outside of work for promoting, hosting, then parsing out transcripts and pulling links from the chats.  When I’m on vacation, not all of that happens as the Transcripts show. As a new school year begins and all the extracurricular activities kick into gear once more I know there will be some time shifts, and the chat needs even more promotion to encourage others to participate in the networking fun.

What is the most effective use of time and resources for the #medlibs chat? Does something need to change? What connections need to be tapped for effective promotion and engagement? I certainly don’t know, but I’m investing some time to try and figure these dynamics out better by enrolling in Social Network Analysis – brought to my attention thanks to social networking via Patricia Anderson. Unlike my earlier elementary school days, I also can’t wait for the first day of school to start on September 24th and encourage you to take a look and considering signing up too!

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